The New York State Department of Health (Department), Division of Family Health, Bureau of Child Health, seeks to improve health outcomes for adolescents and young adults (AYA) ages 12-21 with sickle cell disease (SCD) throughout their care and treatment, including as they transition from pediatric to adult health care providers and strive to achieve self-care.
Donor Name: New York State Department of Health
State: New York
County: All Counties
Type of Grant: Grant
Deadline: 12/01/2022
Size of the Grant: $850,000
Grant Duration: 5 years
Details:
Program Goal
The goal of this RFA is to improve the quality of life/health outcomes for children, and adolescents and youth adults (AYA) with sickle cell disease (SCD), ultimately resulting in transition to self-care management and to adult medical care providers. This transition will be accomplished through the provision of care management services, linkages with Health Homes for eligible individuals, and consistent implementation of transition services.
Grantees will develop and implement a transition and care management model using health care professionals and/or community health workers/paraprofessionals under the supervision of qualified professionals to:
- Assist individuals in scheduling appointments and follow-up to ensure appointments are kept through means such as reminders, text messaging, or home visits that best meet the needs of the population served;
- Provide support and linkages for the range of health and social supports and services needed by the child or AYA with SCD and their families;
- Provide and reinforce culturally competent educational messages to impart an understanding of self-management and preventive health care including non-medical mechanisms for pain management;
- Advocate for needed supports and services including linkages with other individuals and families living with SCD;
- Partner with local health Department (LHD) Children and Youth with Special Health Care Needs (CYSHCN) programs to promote their HSC Center services.
Funding Information
Approximately $850,000 is available to support this five-year initiative. The Department anticipates awarding up to three contracts for a five-year period, with an expected term of October 1, 2023 through September 30, 2028. The award for each contract is expected to be up to $56,666 annually, subject to state appropriation authority and acceptable performance and compliance with all contract requirements. The awards will be made to the highest scoring applicants.
Who May Apply?
- In order to apply, an Applicant must be an Article 28 HSC Center certified by the NYS Newborn Screening Program at the Department.
- Preferred Qualifications
- Preference will be given to applicants that have:
- At least two years experience with enhanced care coordination and navigation/transition services to better engage individuals with SCD into the health care system.
- Experience with family and youth involvement in the development of processes and protocols, evaluation of services, and support of youth and families.
- Preferred qualifications will be rated on years of experience with providing care management and navigator/transition services, as well as family/individual ongoing involvement in the development, implementation, and evaluation of these processes.
- Preference will be given to applicants that have:
For more information, visit NYSDH.
