The Health Resources and Services Administration announces the opportunity to apply for funding under the Cooperative Newborn Screening System Priorities Program (NBS Co-Propel).
Donor Name: Health Resources and Services Administration (HRSA)
State: All States
County: All Counties
Type of Grant: Grant
Deadline: 02/23/2024
Size of the Grant: $100,000 to $500,000
Grant Duration: 4 Years
Details:
The purpose of this program is to strengthen the newborn screening (NBS) system to provide screening, counseling, and health care services to newborns and children with, or at risk for, heritable disorders and help them achieve the best possible outcomes. Funding will support up to 10 recipients to address state/territory-specific challenges and pursue priorities to enhance, improve, and expand their NBS System; increase timely collection and reporting of NBS specimens to improve early diagnosis and treatment for individuals with heritable conditions identified through NBS; and support long-term follow-up (LTFU) for individuals with Severe Combined Immunodeficiency (SCID) and other NBS conditions that link public health agencies, clinicians, and meaningfully engages and partners with families.
The HRSA Maternal and Child Health Bureau (MCHB) administers programs with focus areas in maternal and women’s health, adolescent and young adult health, perinatal and infant health, child health, and children with special health care needs. To achieve its mission of improving the health and well-being of America’s mothers, children, and families, MCHB is implementing a strategic plan that includes the following four goals:
- Goal 1: Assure access to high quality and equitable health services to optimize health and well-being for all MCH populations.
- Goal 2: Achieve health equity for MCH populations.
- Goal 3: Strengthen public health capacity and workforce for MCH.
- Goal 4: Maximize impact through leadership, partnership, and stewardship.
NBS Co-Propel has two focus areas:
- Focus Area 1 includes activities related to improving collection of specimens, testing of specimens, and reporting out of results, including improving the timeliness of these activities; and implementing screening for newly added RUSP conditions.
- Focus Area 2 includes activities related to improving short-term follow-up2 through long-term follow-up3 and helping families understand and navigate the process from confirmation of a diagnosis to treatment, and through follow-up across the lifespan. These activities include expanding access to diagnosis and treatment resources for providers and families of infants with SCID and other NBS disorders with a focus on reaching underserved populations, and empowering families to actively engage at all levels of the NBS system
Program Objectives
Funding will support up to 10 recipients to
- address state/territory-specific challenges and pursue priorities to enhance, improve, and expand their Newborn Screening (NBS) System;
- increase timely collection and reporting of NBS specimens to improve early diagnosis and treatment for individuals with heritable conditions identified through NBS; and
- support long-term follow-up for individuals with Severe Combined Immunodeficiency and other NBS conditions that link public health agencies, clinicians, and meaningfully engages and partners with families.
Funding Information
$345,000 – $500,000 per year subject to the availability of appropriated funds
- $345,000 annually for a single state/territory.
- $422,500 annually for a consortium of 2 states/territories or an organization partnered with a single state/territory.
- $500,000 annually for a consortium of 3 or more states/territories or an organization with appropriate expertise in newborn screening partnered with a consortium of 2 or more states/territories (reflecting direct and indirect costs per year).
Project Period
The period of performance is July 1, 2024, through June 30, 2028 (4 years).
Eligibility Criteria
You can apply if your organization is in the United States and is a state or political subdivision; a consortium of two or more states or political subdivision of states; a territory; a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Services; or any other entity with appropriate expertise in NBS as determined by the Secretary, including a faith-based organization, tribe, or tribal organization. The term “state” includes, in addition to the several states, only the District of Columbia, Guam, the Commonwealth of Puerto Rico, the Northern Mariana Islands, the Virgin Islands, American Samoa, and the Trust Territory of the Pacific Islands (Federated States of Micronesia, the Republic of the Marshall Islands, and Republic of Palau).
For more information, visit Grants.gov.
